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Study identifier: NCT05676099 Synced from ClinicalTrials.gov · July 29, 2026
● Recruiting

TSC Biosample Repository and Natural History Database

Condition: Tuberous Sclerosis · Lymphangioleiomyomatosis  ·  Sponsor: National Tuberous Sclerosis Association

PhaseN/A
Planned participants5000
Who can joinAll sexes, N/A to no upper limit
Healthy volunteersNo

About this study

The TSC Biosample Repository collects and stores samples of blood, DNA, and tissues that scientists can request to use in their research. The samples we collect are all linked to clinical data in the TSC Natural History Database. The TSC Natural History Database captures clinical data to document the impact of the disease on a person's health over his or her lifetime. This data may be collected retrospectively or prospectively.

This description comes directly from the study's public registry record.

Talk to the study team

Elizabeth Cassidy, MPH  ·  301-562-9890  ·  ecassidy@tscalliance.org

Ayat Abi  ·  aabi@tscalliance.org

Always discuss trial participation with your own doctor first.

Locations (26)

University of Alabama BirminghamBirmingham, Alabama, United StatesRecruiting
Loma Linda University Children's HospitalLoma Linda, California, United StatesRecruiting
University of California Los AngelesLos Angeles, California, United StatesRecruiting
Jack & Julia Center for TSC, Oakland Children's Hospital and Research CenterOakland, California, United StatesCompleted
The Children's HospitalDenver, Colorado, United StatesRecruiting
Nicklaus Children's HospitalMiami, Florida, United StatesRecruiting
Chicago Comer Children's Hospital Neurogenetic Clinic, University of ChicagoChicago, Illinois, United StatesRecruiting
University of Iowa Hospitals and ClinicsIowa City, Iowa, United StatesRecruiting
TSC AllianceSilver Spring, Maryland, United StatesRecruiting
Boston Children's HospitalBoston, Massachusetts, United StatesRecruiting
Massachusetts General HospitalBoston, Massachusetts, United StatesRecruiting
Minnesota Epilepsy GroupRoseville, Minnesota, United StatesRecruiting

+ 14 more locations — full list on the registry record.

Follow this study

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Source record: clinicaltrials.gov/study/NCT05676099