Condition: Neurodegeneration With Brain Iron Accumulation (NBIA) · Pantothenate Kinase-associated Neurodegeneration (PKAN) · Beta-Propeller Protein-Associated Neurodegeneration (BPAN) · Sponsor: LMU Klinikum
TIRCON-reg aims to * continue the provision of a global registry and natural history study for NBIA disorders * harmonize and cover existing national and single site registries * enable participation of countries and single sites that so far have no access to an NBIA registry * join forces in order to recruit sufficient numbers of patients * define the natural history of NBIA disorders * define the most appropriate outcome measures * inform the design and facilitate the conduction of clinical trials
This description comes directly from the study's public registry record.
Boriana Büchner, Dr. · +49 89 4400 · boriana.buechner@med.uni-muenchen.de
Almut Bischoff · +49 89 4400 · almut.bischoff@med.uni-muenchen.de
Always discuss trial participation with your own doctor first.
| Children's Hospital of Eastern Ontario, Division of Neurology, Department of Pediatrics | Ottawa, Canada | Recruiting |
| Charles University, Department of neurology | Prague, Czechia | Recruiting |
| LMU Klinikum, Friedrich-Baur-Institute | Munich, Bavaria, Germany | Recruiting |
| The Foundation of the Carlo Besta Neurological Institute, IRCCS | Milan, Italy | Recruiting |
| University medical Center Groningen (UMCG) Department of Neurology AB 51 | Groningen, Netherlands | Recruiting |
| The Childrens Memorial Health Institute | Warsaw, Poland | Recruiting |
| University of Belgrade, Department of Movement Disorders and Degenerative Brain Diseases | Belgrade, Serbia | Recruiting |
| Hospital Vall d'Hebron - Institut de Recerca (VHIR), Pediatric Neurology, Movement Disorders | Barcelona, Spain | Active Not Recruiting |
| Hospital Sant Joan de Déu, Universitat de Barcelona, Servei de Neurología | Barcelona, Spain | Active Not Recruiting |
Get one email when the public record changes — results posted, or the study's status changes. Nothing else, ever.
We email about this public record only. Unsubscribe anytime with one click. Never medical advice.
This page is independently generated by Eichor from the public ClinicalTrials.gov record and re-synced daily. It is not the sponsor's official website unless claimed. Nothing here is medical advice; eligibility is always determined by the study team — talk to your own doctor first.
Source record: clinicaltrials.gov/study/NCT05522374