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Study identifier: NCT05508971 Synced from ClinicalTrials.gov · July 28, 2026
● Recruiting

Treatment of Obstructive Sleep Apnea With Personalized Surgery in Children With Down Syndrome (TOPS-DS)

Condition: Obstructive Sleep Apnea · Down Syndrome  ·  Sponsor: Oregon Health and Science University

PhaseNA
Planned participants304
Who can joinAll sexes, 2 Years to 17 Years
Healthy volunteersNo

About this study

The overall objective of this randomized clinical trial is to test the effectiveness of a personalized approach to the surgical treatment of OSA in children with Down syndrome (DS).The estimated prevalence of obstructive sleep apnea (OSA) in children with DS ranges from 45-83%, compared to 1-6% in the general pediatric population. Untreated OSA in children has been associated with daytime sleepiness, cognitive or behavioral problems, and cardiovascular complications, all which are common in children with DS. Adenotonsillectomy (AT) is the first line treatment for OSA in children, however, most large studies of AT outcomes have excluded children with DS. Available evidence demonstrates that AT is far less effective in children with DS than in the general pediatric population, with 48 to 95% of children with DS having persistent OSA after AT. Medical treatments such as positive airway pressure (PAP) therapy are frequently inadequate or poorly tolerated in this population, so many children with DS and OSA remain untreated. Drug-induced sleep endoscopy (DISE) enables direct observation of the sites and patterns of obstruction during sedated sleep using a flexible endoscope passed through the nose into the pharynx. DISE was developed to guide surgical decisions in adult OSA, and in recent years has also been used to design personalized surgical interventions in children. Using this DISE Rating Scale, the investigators have demonstrated that children with DS are more prone to tongu…

This description comes directly from the study's public registry record.

Talk to the study team

Eleni O'Neill  ·  503-875-9895  ·  topsds@ohsu.edu

Derek Lam, MD  ·  503-494-9419  ·  lamde@ohsu.edu

Always discuss trial participation with your own doctor first.

Locations (7)

Colorado Children's HospitalAurora, Colorado, United StatesRecruiting
University of MichiganAnn Arbor, Michigan, United StatesRecruiting
Cincinnati Children's HospitalCincinnati, Ohio, United StatesTerminated
Oregon Health and Science UniversityPortland, Oregon, United StatesRecruiting
UT Southwestern Medical CenterDallas, Texas, United StatesRecruiting
Texas Children's HospitalHouston, Texas, United StatesRecruiting
EVMS Medical SchoolNorfolk, Virginia, United StatesRecruiting

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Source record: clinicaltrials.gov/study/NCT05508971