Condition: VWD - Von Willebrand's Disease · Sponsor: VWD Connect Foundation
A web-based registry will be created by the sponsor, VWD Connect Foundation (VCF), to collect data on patients with severe Von Willebrand Disease (sVWD). Data will be self-reported by patients and/or collected by registry personnel, as appropriate. The purpose of the sVWD Patient Registry is to create a database of well-characterized (with respect to demographics, medical history, symptoms, laboratory and genetic data, etc.) patients with sVWD for participation in retrospective and prospective research.
This description comes directly from the study's public registry record.
Christina Morgenthaler, MS, MBA · (279) 346-6202 · morgenthaler@vwdregistry.org
Always discuss trial participation with your own doctor first.
| VWD Connect Foundation | Wellington, Florida, United States | Recruiting |
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Source record: clinicaltrials.gov/study/NCT05437536