Condition: Angelman Syndrome · Sponsor: Foundation for Angelman Syndrome Therapeutics, Australia
The Global Angelman Syndrome Registry is an online patient organisation driven registry to collect information about the natural history of children and adults with Angelman Syndrome. The registry will facilitate 1) recruitment for clinical trials into therapies and interventions to benefit participants with Angelman Syndrome and their families, and 2) advancement of research and best standards of care for Angelman Syndrome. The registry is currently available in English, Spanish, Traditional Chinese, Italian, Polish, Hindi, and Brazilian Portuguese.
This description comes directly from the study's public registry record.
Megan Tones, PhD · curator@angelmanregistry.info
Always discuss trial participation with your own doctor first.
| Queensland University of Technology | Brisbane, Queensland, Australia | Recruiting |
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Source record: clinicaltrials.gov/study/NCT05293184