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Study identifier: NCT05239858 Synced from ClinicalTrials.gov · July 29, 2026
● Recruiting

International Wilson's Disease Patient Registry (iWilson Registry)

Condition: Wilson's Disease  ·  Sponsor: Orphalan

PhaseN/A
Planned participants500
Who can joinAll sexes, 12 Years to no upper limit
Healthy volunteersNo

About this study

Longitudinal, observational, non-interventional, standard of care Registry. Data will be collected from the routinely scheduled WD clinic visits at approximately 6-12 month intervals. At enrolment, in addition to data from the clinic visit, retrospective data will be collected from the diagnostic evaluation and any relevant past medical history and a summary of WD medication history.

This description comes directly from the study's public registry record.

Talk to the study team

Carla Bennett  ·  +44 (0)7918380893  ·  clinicaloperations@orphalan.com

Maureen Richardson  ·  clinicaloperations@orphalan.com

Always discuss trial participation with your own doctor first.

Locations (16)

University Hospital LeuvenLeuven, BelgiumRecruiting
Hospices Civils de LyonBron, Auvergne-Rhône-Alpes, FranceRecruiting
HF Adolphe de RothschildParis, Île-de-France Region, FranceRecruiting
Charite-Univeritatsmedizin Berlin HospitalBerlin, GermanyRecruiting
Universitatsklinikum DusseldorfDüsseldorf, GermanyRecruiting
Hannover Medical School (MHH)Hanover, GermanyRecruiting
Universitätsklinikum LeipzigLeipzig, GermanyRecruiting
Institute of Psychiatry and NeurologyWarsaw, PolandRecruiting
The Children's Memorial Health InstituteWarsaw, PolandRecruiting
King Faisal Specialist Hospital in RiyadhRiyāḑ, Riyadh Region, Saudi ArabiaRecruiting
Hospital Universitario GC Dr NegrínLas Palmas de Gran Canaria, Canary Islands, SpainRecruiting
University Hospital Clínic de Barcelona, C. de VillarroelBarcelona, SpainRecruiting

+ 4 more locations — full list on the registry record.

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Source record: clinicaltrials.gov/study/NCT05239858