Condition: Cardiomyopathy · Sponsor: Tenaya Therapeutics
The objective of this study is to collect information on patients with cardiomyopathy (CM) due to mutations in the MYBPC3 gene, to evaluate their disease course, burden of illness, risk factors for this disease, and the quality of life (QoL). This study will also collect information on treatments, procedures and outcome in infants and children up to 18 yrs who have this mutation.
This description comes directly from the study's public registry record.
Matthew Pollman, MD · 650-209-8092 · mpollman@tenayathera.com
LaTanya Tomlinson · clinical.trials@tenayathera.com
Always discuss trial participation with your own doctor first.
| Arkansas Children's Hospital | Little Rock, Arkansas, United States | Recruiting |
| Children's Hospital Los Angeles | Los Angeles, California, United States | Recruiting |
| University of California Davis Health | Sacramento, California, United States | Recruiting |
| Rady Children's Hospital - San Diego | San Diego, California, United States | Recruiting |
| University of Colorado Hospital - Anschutz Medical Campus | Aurora, Colorado, United States | Recruiting |
| Nemours Alfred I. Dupont Hospital for Children | Wilmington, Delaware, United States | Recruiting |
| Joe DiMaggio Children's Hospital | Hollywood, Florida, United States | Recruiting |
| Children's Mercy Hospital Kansas | Kansas City, Missouri, United States | Recruiting |
| St. Louis Children's Hospital | St Louis, Missouri, United States | Recruiting |
| Cohen Children's Medical Center | Lake Success, New York, United States | Recruiting |
| Mount Sinai | New York, New York, United States | Recruiting |
| Columbia University Irving Medical Center | New York, New York, United States | Recruiting |
+ 17 more locations — full list on the registry record.
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Source record: clinicaltrials.gov/study/NCT05112237