Condition: SMA · DMD · BMD · Sponsor: University of Bern
The Swiss Patient Registry for DMD/BMD and SMA was launched in 2008 in order to give Swiss patients access to new therapies. It was founded with the financial support of several patient organizations and research foundations. Since 2008, children, adolescents and adults with DMD, BMD and SMA are registered with the help of all major muscle centers in Switzerland. After nearly ten years of activity, the Swiss Patient Registry for DMD/BMD and SMA implemented several adaptations in 2018 to meet current and future expectations of patient's organizations, health authorities and research organizations.
This description comes directly from the study's public registry record.
Claudia E Kuehni, Prof. MD · +41 (0)31 684 35 07 · swiss-reg-nmd.ispm@unibe.ch
Always discuss trial participation with your own doctor first.
| Cantonal Hospital Aarau | Aarau, Canton of Aargau, Switzerland | Recruiting |
| Pediatric Institute of Southern Switzerland, Ospedale San Giovanni | Bellinzona, Canton Ticino, Switzerland | Recruiting |
| Neuro Centre of Italian Switzerland, Ospedale Regionale di Lugano | Lugano, Canton Ticino, Switzerland | Recruiting |
| University Hospital Lausanne CHUV, Children's Hospital | Lausanne, Vaude, Switzerland | Recruiting |
| University Hospital Lausanne CHUV | Lausanne, Vaude, Switzerland | Recruiting |
| University Children's Hospital Basel | Basel, Switzerland | Recruiting |
| University Hospital Basel | Basel, Switzerland | Recruiting |
| Inselspital Bern, Children's Hospital | Bern, Switzerland | Recruiting |
| Inselspital Bern | Bern, Switzerland | Recruiting |
| Institute of Social and Preventive Medicine (ISPM), University of Bern | Bern, Switzerland | Recruiting |
| University Hospitals of Geneva, Children's Hospital | Geneva, Switzerland | Recruiting |
| University Hospitals of Geneva | Geneva, Switzerland | Recruiting |
+ 7 more locations — full list on the registry record.
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Source record: clinicaltrials.gov/study/NCT05102916