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Study identifier: NCT05101304 Synced from ClinicalTrials.gov · July 28, 2026
● Recruiting

Registre HEAR, Healthcare European Amyloidosis Registry

Condition: Cardiac Amyloidosis  ·  Sponsor: Saving Lives Matters

PhaseN/A
Planned participants5000
Who can joinAll sexes, N/A to no upper limit
Healthy volunteersNo

About this study

This is a non-interventional, prospective, retrospective, non-comparative, multi-center study. In order not to interfere with patient management, the study is observational. Thus, no follow-up visit is imposed. The data collection will be limited to the data related to the management of the patients included throughout their follow-up. This study is intended for all patients with a confirmed or suspected diagnosis of cardiac amyloidosis. Three cohorts will be identified: the HEAR (Healthcare European Amyloidosis Registry)-Retrospective Cohort, the HEAR(Healthcare European Amyloidosis Registry)-Retrospective-Prospective Cohort and the HEAR (Healthcare European Amyloidosis Registry)-Prospective Cohort.

This description comes directly from the study's public registry record.

Talk to the study team

Mounira Kharoubi  ·  +33650029257  ·  mounira.kharoubi@gmail.com

Rébecca Gene  ·  +33628274249  ·  rebecca.gene@gmail.com

Always discuss trial participation with your own doctor first.

Locations (1)

Hôpital Henri MondorCréteil, FranceRecruiting

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Source record: clinicaltrials.gov/study/NCT05101304