Condition: Li-Fraumeni Syndrome · Li-Fraumeni-Like Syndrome · Sponsor: Istituto Ortopedico Rizzoli
ReLF is a retrospective and prospective registry, finalized for care and research purposes. It is articulated in main sections - strongly related and mutually dependent on each other - corresponding to different data domains: personal information, clinical data, genetic data, genealogical data, surgeries, etc. This approach has been developed to corroborate and integrate data from different resources and aspects of the diseases and to correlate genetic background and phenotypic outcomes, in order to better investigate diseases pathophysiology. Due to legal requirements, institutional directives and organizational issues, we are unable to include individuals residing outside Italy in the registry at this time. We are currently engaged in the preparation of a recruitment process for individuals residing outside Italy.
This description comes directly from the study's public registry record.
Marina Mordenti, PhD · +39-0516366062 · registri.malattierare@ior.it
Marcella Lanza, PhD · +39-0516366169 · registri.malattierare@ior.it
Always discuss trial participation with your own doctor first.
| Irccs Istituto Ortopedico Rizzoli | Bologna, Emilia-Romagna, Italy | Recruiting |
| IRCCS Istituto Ortopedico Rizzoli | Bologna, Emilia-Romagna, Italy | Enrolling By Invitation |
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Source record: clinicaltrials.gov/study/NCT04982744