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Study identifier: NCT04917887 Synced from ClinicalTrials.gov · July 28, 2026
● Recruiting

Long-Term Follow-up Protocol

Condition: Dystrophic Epidermolysis Bullosa · Recessive Dystrophic Epidermolysis Bullosa · Dominant Dystrophic Epidermolysis Bullosa  ·  Sponsor: Krystal Biotech, Inc.

PhaseN/A
Planned participants50
Who can joinAll sexes, 6 Months to no upper limit
Healthy volunteersNo

About this study

The main objective of this prospective, observational, long-term follow-up (LTFU) study is to evaluate the long-term safety profile of the gene therapy products evaluated by Krystal Biotech, Inc. which have a shared backbone of HSV-1, in participants who received at least one dose of investigational product (IP).

This description comes directly from the study's public registry record.

Talk to the study team

Brittani Agostini  ·  4125865830  ·  bagostini@krystalbio.com

Always discuss trial participation with your own doctor first.

Locations (3)

Mission Dermatology CenterRancho Santa Margarita, California, United StatesRecruiting
Stanford UniversityRedwood City, California, United StatesRecruiting
Pediatric Skin ResearchCoral Gables, Florida, United StatesRecruiting

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Source record: clinicaltrials.gov/study/NCT04917887