← Eichor
Study identifier: NCT04883905 Synced from ClinicalTrials.gov · July 29, 2026
● Recruiting

ELEVATE, a Registry of Patients With Acute Hepatic Porphyria (AHP)

Condition: Acute Hepatic Porphyria  ·  Sponsor: Alnylam Pharmaceuticals

PhaseN/A
Planned participants150
Who can joinAll sexes, 12 Years to no upper limit
Healthy volunteersNo

About this study

This global patient registry is being conducted to characterize the natural history and real-world clinical management of patients with AHP, and to further characterize the real-world safety and effectiveness of givosiran and other approved AHP therapies.

This description comes directly from the study's public registry record.

Talk to the study team

Alnylam Clinical Trial Information Line  ·  1-877-ALNYLAM  ·  clinicaltrials@alnylam.com

Alnylam Clinical Trial Information Line  ·  1-877-256-9526  ·  clinicaltrials@alnylam.com

Always discuss trial participation with your own doctor first.

Locations (30)

Clinical Trial SiteBirmingham, Alabama, United StatesRecruiting
Clinical Trial SiteGilbert, Arizona, United StatesRecruiting
Clinical Trial SiteSan Francisco, California, United StatesRecruiting
Clinical Trial SiteBaltimore, Maryland, United StatesRecruiting
Clinical Trial SiteBoston, Massachusetts, United StatesRecruiting
Clinical Trial SiteMinneapolis, Minnesota, United StatesRecruiting
Clinical Trial SiteNew York, New York, United StatesRecruiting
Clinical Trial SiteWinston-Salem, North Carolina, United StatesCompleted
Clinical Trial SiteOklahoma City, Oklahoma, United StatesRecruiting
Clinical Trial SitePhiladelphia, Pennsylvania, United StatesCompleted
Clinical Trial SiteGalveston, Texas, United StatesRecruiting
Clinical Trial SiteSalt Lake City, Utah, United StatesRecruiting

+ 18 more locations — full list on the registry record.

Follow this study

Get one email when the public record changes — results posted, or the study's status changes. Nothing else, ever.

We email about this public record only. Unsubscribe anytime with one click. Never medical advice.

Is this your study? This page was generated automatically from the public registry record. Sponsors can claim it — free — to add branding and verified contact routing. Claim this page →

This page is independently generated by Eichor from the public ClinicalTrials.gov record and re-synced daily. It is not the sponsor's official website unless claimed. Nothing here is medical advice; eligibility is always determined by the study team — talk to your own doctor first.

Source record: clinicaltrials.gov/study/NCT04883905