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Study identifier: NCT04850105 Synced from ClinicalTrials.gov · July 28, 2026
● Recruiting

A Non-interventional Cohort Safety Study of Patients With hATTR-PN

Condition: Hereditary Transthyretin Amyloidosis With Polyneuropthy  ·  Sponsor: Akcea Therapeutics

PhaseN/A
Planned participants240
Who can joinAll sexes, 18 Years to no upper limit
Healthy volunteersNo

About this study

This is a prospective, non-interventional, Long-term, multinational cohort safety study of patients with Hereditary Transthyretin Amyloidosis with Polyneuropathy (hATTR-PN). The overarching goal of this study is to further characterize the long-term safety of TEGSEDI (inotersen) in patients with hATTR-PN under real-world conditions.

This description comes directly from the study's public registry record.

Talk to the study team

Ionis Pharmaceuticals  ·  (844) 915-5145  ·  ionisNCT04850105study@clinicaltrialmedia.com

Always discuss trial participation with your own doctor first.

Locations (26)

Study CentreSofia, BulgariaRecruiting
Study CentreÉgkomi, Nicosia, CyprusRecruiting
Study CenterLille, Cedex, FranceRecruiting
Study CenterNice, Romaine, FranceRecruiting
Study CentreNantes, FranceRecruiting
Study CenterHeidelberg, GermanyRecruiting
Study CenterAthens, GreeceRecruiting
Study CenterAthens, GreeceRecruiting
Study CenterHeraklion, GreeceRecruiting
Study CentreRoma, Rome, ItalyRecruiting
Study CenterBologna, ItalyRecruiting
Study CenterGenova, ItalyRecruiting

+ 14 more locations — full list on the registry record.

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Source record: clinicaltrials.gov/study/NCT04850105