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Study identifier: NCT04778657 Synced from ClinicalTrials.gov · July 29, 2026
● Recruiting

National Exhaustive Cohort of Hereditary Stomatocytoses and Other Channelopathies Affecting the Red Blood Cell

Condition: Stomatocytosis  ·  Sponsor: Assistance Publique - Hôpitaux de Paris

PhaseN/A
Planned participants150
Who can joinAll sexes, N/A to no upper limit
Healthy volunteersNo

About this study

Hereditary stomatocytosis is a heterogeneous group of rare constitutional diseases of dominant transmission in the vast majority of cases. The data concerning their clinical and biological presentation, and their evolution are few, and come from about thirty clinical cases. The constitution of an exhaustive French cohort of hereditary stomatocytosis will improve the establishment of the diagnosis and the management of patients

This description comes directly from the study's public registry record.

Talk to the study team

Corinne GUITTON, MD,PhD  ·  01 45 21 32 47  ·  corinne.guitton@aphp.fr

Always discuss trial participation with your own doctor first.

Locations (1)

AP-HP, Bicêtre Hospital, Pediatrics - Hematology - Reference center for Sickle cell anemia, Thalassemia and other constitutional diseases of the red blood cellLe Kremlin-Bicêtre, FranceRecruiting

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Source record: clinicaltrials.gov/study/NCT04778657