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Study identifier: NCT04715399 Synced from ClinicalTrials.gov · July 28, 2026
● Recruiting

UPenn Observational Research Repository on Neurodegenerative Disease

Condition: Frontotemporal Degeneration(FTD) · Primary Progressive Aphasia(PPA) · Familial Frontotemporal Lobar Degeneration (fFTLD)  ·  Sponsor: University of Pennsylvania

PhaseN/A
Planned participants1000
Who can joinAll sexes, 18 Years to no upper limit
Healthy volunteersYes

About this study

The aim of this study is to create a repository of both cross-sectional and longitudinal data, including cognitive, linguistic, imaging and biofluid biological specimens, for neurodegenerative disease research and treatment.

This description comes directly from the study's public registry record.

Talk to the study team

Emily Xie  ·  215-746-2781  ·  emily.xie@pennmedicine.upenn.edu

Dahlia Kamel  ·  kamel.dahlia@pennmedicine.upenn.edu

Always discuss trial participation with your own doctor first.

Locations (1)

University of PennsylvaniaPhiladelphia, Pennsylvania, United StatesRecruiting

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Source record: clinicaltrials.gov/study/NCT04715399