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Study identifier: NCT04611516 Synced from ClinicalTrials.gov · July 28, 2026
● Recruiting

The Ear-Nose-Throat (ENT) Prospective International Cohort of PCD Patients (EPIC-PCD)

Condition: Primary Ciliary Dyskinesia · Kartagener Syndrome  ·  Sponsor: University of Bern

PhaseN/A
Planned participants1000
Who can joinAll sexes, N/A to no upper limit
Healthy volunteersNo

About this study

The Ear-Nose-Throat (ENT) Prospective International Cohort of patients with Primary Ciliary Dyskinesia (EPIC-PCD) is a prospective observational clinical cohort study, set up as a multinational multi-centre study. It is embedded into routine patient care of participating reference centres for PCD and patients keep being managed according to local procedures and guidelines.

This description comes directly from the study's public registry record.

Talk to the study team

Myrofora Goutaki, MD-PhD  ·  0041 316315973  ·  myrofora.goutaki@unibe.ch

Always discuss trial participation with your own doctor first.

Locations (1)

University of BernBern, SwitzerlandRecruiting

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Source record: clinicaltrials.gov/study/NCT04611516