Condition: Primary Ciliary Dyskinesia · Sponsor: University of Bern
Living with PCD (formerly COVID-PCD) is a participatory research project that aims to answer emerging questions about primary ciliary dyskinesia (PCD) in order to improve the health and quality of life of people with PCD. Persons with confirmed or suspected PCD from anywhere in the world can participate. The study is advertised through patient support groups and participants register online after they read detailed information about the study. Participants receive a detailed questionnaire when they start the study and a follow-up questionnaire (planned once per year). Occasionally, participants receive extra questionnaires focused on special topics. The study is hosted at the University of Bern and recruitment started on May 30th, 2020.
This description comes directly from the study's public registry record.
Claudia E Kuehni, Prof. · +41 31 684 35 07 · claudia.kuehni@unibe.ch
Myrofora Goutaki, Prof · +41 31 684 5973 · myrofora.goutaki@unibe.ch
Always discuss trial participation with your own doctor first.
| Institute of Social and Preventive Medicine (ISPM), University of Bern | Bern, Switzerland | Recruiting |
Get one email when the public record changes — results posted, or the study's status changes. Nothing else, ever.
We email about this public record only. Unsubscribe anytime with one click. Never medical advice.
This page is independently generated by Eichor from the public ClinicalTrials.gov record and re-synced daily. It is not the sponsor's official website unless claimed. Nothing here is medical advice; eligibility is always determined by the study team — talk to your own doctor first.
Source record: clinicaltrials.gov/study/NCT04602481