Condition: MOPDII · Meier-Gorlin Syndrome · Saul-Wilson Syndrome · Sponsor: Nemours Children's Clinic
The goal of this registry is to collect information on individuals with forms of microcephalic primordial dwarfism as well as related conditions. The study team hopes to learn more about these conditions and improve the care of people with them by establishing this registry.
This description comes directly from the study's public registry record.
Angela Duker, MS, CGC · 302-651-4181 · aduker@nemours.org
Emily Longenecker, BS · 302-298-7978 · emily.longenecker@nemours.org
Always discuss trial participation with your own doctor first.
| Nemours | Wilmington, Delaware, United States | Recruiting |
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Source record: clinicaltrials.gov/study/NCT04569149