Condition: Angelman Syndrome · Sponsor: Boston Children's Hospital
The goal of this study is to conduct a prospective, longitudinal natural history study of children and adults with Angelman Syndrome using investigator-observed and parent-reported outcome measures to obtain data that will be useful for future clinical trials.
This description comes directly from the study's public registry record.
Wen-Hann Tan, BMBS · 617-355 6394 · wen-hann.tan@childrens.harvard.edu
Batsheva Friedman, MA · 617-355-2030 · Batsheva.Friedman@childrens.harvard.edu
Always discuss trial participation with your own doctor first.
| Cedars-Sinai Guerin Children's | Los Angeles, California, United States | Not Yet Recruiting |
| Rady Children's Hospital, San Diego | San Diego, California, United States | Recruiting |
| Children's Hospital Colorado, Anschutz Medical Campus | Aurora, Colorado, United States | Recruiting |
| Emory University School of Medicine | Atlanta, Georgia, United States | Recruiting |
| Rush University Children's Hospital | Chicago, Illinois, United States | Recruiting |
| Boston Children's Hospital | Boston, Massachusetts, United States | Recruiting |
| The Carolina Institute for Developmental Disabilities | Carrboro, North Carolina, United States | Recruiting |
| Monroe Carell Jr. Children's Hospital at Vanderbilt | Nashville, Tennessee, United States | Recruiting |
| Alberta Children's Hospital | Calgary, Alberta, Canada | Recruiting |
| BC Children's Hospital | Vancouver, British Columbia, Canada | Recruiting |
| Children's Hospital of Eastern Ontario | Ottawa, Ontario, Canada | Recruiting |
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Source record: clinicaltrials.gov/study/NCT04507997