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Study identifier: NCT04454216 Synced from ClinicalTrials.gov · July 29, 2026
● Recruiting

GSD VI and GSD IX Natural History

Condition: Glycogen Storage Disease VI · GLYCOGEN STORAGE DISEASE IXa1 · GLYCOGEN STORAGE DISEASE IXa2  ·  Sponsor: Duke University

PhaseN/A
Planned participants400
Who can joinAll sexes, 0 Years to 90 Years
Healthy volunteersNo

About this study

Collection and review of clinical information related to Glycogen Storage Disease Type VI (GSD VI) OR Glycogen Storage Disease Type IX (GSD IX) generated during clinic visits.

This description comes directly from the study's public registry record.

Talk to the study team

Rebecca L Koch, PhD, RDN  ·  919-681-8823  ·  rebecca.koch@duke.edu

Nisha Dalal, M.S. CCC-SLP  ·  919-668-3107  ·  nisha.dalal@duke.edu

Always discuss trial participation with your own doctor first.

Locations (1)

Duke UniversityDurham, North Carolina, United StatesRecruiting

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Source record: clinicaltrials.gov/study/NCT04454216