Condition: Vascular Anomaly · Osler Rendu Disease · Marfan Syndrome or Related · Sponsor: Hospices Civils de Lyon
There are no prospective studies of pregnancies for the diseases studied here in (Heredity Hemorrhagic Telangiectasia, Marfan syndrome or related, primary lower limb lymphedema, superficial arteriovenous malformations, and cerebro-spinal arteriovenous malformations) although complications of these can present life-threatening health problems for the mother and her baby. The purpose of this National prospective study is to obtain greater insight into obstetrical complications associated with rare maternal vascular genetic disorders in order to improve prevention and to reduce risk of death. In this context, experts and patient associations consider that there is a need to make real progress in the formulation of recommendations based on scientific data.
This description comes directly from the study's public registry record.
Sophie DUPUIS-GIROD, MD · 04 27 85 65 25 · sophie.dupuis-girod@chu-lyon.fr
Amal AYADI ROBERT · 04 27 85 66 03 · amal.ayadi@chu-lyon.fr
Always discuss trial participation with your own doctor first.
| Service de Médecine Interne et Maladies Vasculaires + Service Neuropédiatrie et neurochirurgie de l'enfant - CHU Angers | Angers, France | Recruiting |
| Service de Médecine interne et immunologie clinique + Service de Médecine Vasculaire - Hôpital Saint André, CHU de Bordeaux | Bordeaux, France | Withdrawn |
| Service Pneumologie et Oncologie Thoracique - AP-HP Hôpital Ambroise Paré | Boulogne-Billancourt, France | Recruiting |
| Centre de Référence pour la maladie de Rendu-Osler - Service Génétique Clinique - Hôpital Femme-Mère-Enfant - Hospices Civils de Lyon | Bron, France | Recruiting |
| Service d'imagerie médicale - Neuroradiologie interventionnelle - Hôpital Neurologique P. Wertheimer - HCL | Bron, France | Withdrawn |
| Service d'Imagerie Pédiatrique et Fœtale et Consultation Pluridisciplinaire des Angiomes - Hôpital Femme-Mère-Enfant - HCL | Bron, France | Recruiting |
| Service de Génétique, Hôpital Femme-Mère-Enfant | Bron, France | Recruiting |
| Service de Médecine Vasculaire - Hôpital de la Côte de Nacre | Caen, France | Recruiting |
| Service Médecine Interne Estaing CHU de Clermont-Ferrand - Hôpital d'Estaing | Clermont-Ferrand, France | Recruiting |
| CHU Dijon Bourgogne - Hôpital François Mitterrand | Dijon, France | Recruiting |
| Service de Médecine vasculaire et HTA - Hôpital Albert Calmette, CHRU de Lille | Lille, France | Recruiting |
| Service Médecine interne - CHRU de Lille - Hôpital Claude Huriez | Lille, France | Recruiting |
+ 24 more locations — full list on the registry record.
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Source record: clinicaltrials.gov/study/NCT04194619