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Study identifier: NCT04157049 Synced from ClinicalTrials.gov · July 28, 2026
● Recruiting

Alpha-1 Research Registry

Condition: Alpha 1-Antitrypsin Deficiency  ·  Sponsor: Alpha-1 Foundation

PhaseN/A
Planned participants4000
Who can joinAll sexes, N/A to no upper limit
Healthy volunteersNo

About this study

The Alpha-1 Research Registry is a confidential database made up of individuals diagnosed with Alpha-1 Antitrypsin Deficiency (Alpha-1) and individuals identified as Alpha-1 carriers. The Registry was established to facilitate research initiatives and promote the development of improved treatments and a cure for Alpha-1.

This description comes directly from the study's public registry record.

Talk to the study team

Alison Keaveny, MBBS  ·  1-877-228-7321  ·  akeaveny@alpha1.org

Randel Plant  ·  1-877-228-7321  ·  rplant@alpha1.org

Always discuss trial participation with your own doctor first.

Locations (1)

Alpha-1 FoundationCoral Gables, Florida, United StatesRecruiting

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Source record: clinicaltrials.gov/study/NCT04157049