Condition: Myotubular Myopathy · Myotubular Myopathy 1 · Myotubular (Centronuclear) Myopathy · Sponsor: Newcastle-upon-Tyne Hospitals NHS Trust
The Myotubular and Centronuclear Myopathy Patient Registry (also referred to as the 'MTM and CNM Registry') is an international, patient-reported database specific to these conditions. More details and online registration are available at www.mtmcnmregistry.org.
This description comes directly from the study's public registry record.
Julie Bohill · 0044 191 241 8640 · julie.bohill@newcastle.ac.uk
Always discuss trial participation with your own doctor first.
| Newcastle University | Newcastle upon Tyne, Tyne and Wear, United Kingdom | Recruiting |
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Source record: clinicaltrials.gov/study/NCT04064307