Condition: Polycystic Kidney Diseases · Sponsor: PKD Foundation
The purpose of the ADPKD Registry is to create an online patient network that includes at least 5,000 people with Autosomal Dominant Polycystic Kidney Disease (ADPKD) who contribute data on their health and other topics. The ADPKD Patient Registry aims to support important scientific discoveries and support patient needs in the following ways: * Connect ADPKD patients with opportunities to join clinical studies. * Collect data for the research community to better describe the ADPKD disease experience and improve patient care. * Engage with patients by measuring quality of life outcomes.
This description comes directly from the study's public registry record.
Elise Hoover · 816-268-8478 · eliseh@pkdcure.org
Registry staff · registry@pkdcure.org
Always discuss trial participation with your own doctor first.
| PKD Foundation | Kansas City, Missouri, United States | Recruiting |
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Source record: clinicaltrials.gov/study/NCT04039061