Condition: Myotonic Dystrophy · Sponsor: Newcastle University
Myotonic dystrophy (dystrophia myotonica - DM) exists in two forms, usually referred to as DM1 (type 1) and DM2 (type 2). Both conditions are genetic disorders but each affects a different gene. DM1 is the most common adult-onset muscular dystrophy, and is thought to affect at least 1 in 8,000 people worldwide. The aim is to facilitate a questionnaire based research study in order to better characterise and understand the disease in the UK. By maintaining a national registry this will help identify potential participants eligible for clinical trials in the future.
This description comes directly from the study's public registry record.
Registry Project Manager and Curator · 0191 2418640 · helen.walker2@newcastle.ac.uk
Registries Team · registries@ncl.ac.uk
Always discuss trial participation with your own doctor first.
| John Walton Muscular Dystrophy Research Centre | Newcastle upon Tyne, United Kingdom | Recruiting |
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Source record: clinicaltrials.gov/study/NCT04003363