Condition: Myotonic Dystrophy 1 · DM1 · Sponsor: Virginia Commonwealth University
Building on previous work of the Myotonic Dystrophy Clinical Research Network (DMCRN), the present study seeks to overcome insufficient data on natural history; lack of reliable biomarkers; and incomplete characterization and limited biological understanding of the phenotypic heterogeneity of Myotonic Dystrophy 1 by examining strategies to improve the reliability by making further refinements in our sample collection and analysis procedures by developing strategies for managing patient heterogeneity going forward. Funding Source- FDA OOPD
This description comes directly from the study's public registry record.
Jennifer Raymond · 804-828-6318 · jennifer.raymond@vcuhealth.org
Ruby Langeslay · 804-828-8481 · ruby.langeslay@vcuhealth.org
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| University of California, San Diego | La Jolla, California, United States | Recruiting |
| University of California, Los Angeles | Los Angeles, California, United States | Recruiting |
| University of Colorado - Denver | Denver, Colorado, United States | Recruiting |
| University of Florida | Gainesville, Florida, United States | Recruiting |
| University of Iowa | Iowa City, Iowa, United States | Recruiting |
| Kansas University Medical Center | Kansas City, Kansas, United States | Recruiting |
| University of Rochester | Rochester, New York, United States | Recruiting |
| Ohio State University | Columbus, Ohio, United States | Recruiting |
| Houston Methodist Neurological Institute | Houston, Texas, United States | Recruiting |
| Virginia Commonwealth University | Richmond, Virginia, United States | Recruiting |
| Université de Sherbrooke | Québec, Canada | Active Not Recruiting |
| Friedrich Baur Institute, Ludwig-Maximilians-Universität München | München, Germany | Recruiting |
+ 5 more locations — full list on the registry record.
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Source record: clinicaltrials.gov/study/NCT03981575