Condition: Glomerulosclerosis, Focal Segmental · Minimal Change Disease · Idiopathic Nephrotic Syndrome · Sponsor: Prof. Dr. Paul Brinkkoetter
In a monocentric, later multicentric prospective approach the FOrMe registry (The German Focal Segmental Glomerulosclerosis and Minimal Change Disease Registry) aims to generate a longitudinal cohort of 150 pediatric cases of idiopathic nephrotic syndrome and 350 adult cases of biopsy-proven Minimal Change Disease (MCD) or Focal and Segmental Glomerular Sclerosis (FSGS) over 10 years. The registry will provide a repository for biomaterials such as blood samples, DNA, urine, feces, and tissue biopsies that will be accessible to collaborators to facilitate future research on pathogenesis, diagnostics, and treatment.
This description comes directly from the study's public registry record.
Paul T Brinkkoetter, MD · +49-221-478-4480 · paul.brinkkoetter@uk-koeln.de
Linus A Voelker, MD · +49-221-478-4480 · linus.voelker@uk-koeln.de
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| University Hospital of Cologne | Cologne, North Rhine-Westphalia, Germany | Recruiting |
| Uniklinik RWTH Aachen | Aachen, Germany | Not Yet Recruiting |
| Charité University Hospital | Berlin, Germany | Recruiting |
| Kindernierenzentrum Bonn | Bonn, Germany | Recruiting |
| Kindernephrologie Dachau | Dachau, Germany | Recruiting |
| University Hospital Erlangen | Erlangen, Germany | Not Yet Recruiting |
| University Hospital Essen | Essen, Germany | Recruiting |
| University Hospital Heidelberg | Heidelberg, Germany | Recruiting |
| Klinikum St. Georg | Leipzig, Germany | Recruiting |
| University Hospital Marburg | Marburg, Germany | Recruiting |
| University Hospital Münster | Münster, Germany | Recruiting |
| Klinikum Stuttgart | Stuttgart, Germany | Recruiting |
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Source record: clinicaltrials.gov/study/NCT03949972