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Study identifier: NCT03865420 Synced from ClinicalTrials.gov · July 29, 2026
● Recruiting

Amyotrophic Lateral Sclerosis (ALS) Families Project

Condition: ALS  ·  Sponsor: Columbia University

PhaseN/A
Planned participants300
Who can joinAll sexes, 18 Years to 105 Years
Healthy volunteersNo

About this study

This program provides family members of individuals with familial ALS the opportunity to contribute to research focused on learning more about why motor neuron degeneration begins and how or why it progresses. This study provides genetic counseling and testing to help participants understand and manage their risk and determine if they want to learn their genetic status. This study will follow unaffected ALS gene mutation carriers on an annual basis to gather essential information that will ultimately help researchers develop novel therapies for the prevention and treatment of ALS.

This description comes directly from the study's public registry record.

Talk to the study team

Elizabeth Harrington, MS, CGC  ·  347-852-5315  ·  ALSFamiliesProject@cumc.columbia.edu

Matthew Harms, MD

Always discuss trial participation with your own doctor first.

Locations (1)

Columbia UniversityNew York, New York, United StatesRecruiting

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Source record: clinicaltrials.gov/study/NCT03865420