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Study identifier: NCT03624374 Synced from ClinicalTrials.gov · July 28, 2026
● Recruiting

Natural History Study of Leukoencephalopathy With Brainstem and Spinal Cord Involvement and Lactate Elevation (LBSL)

Condition: Leukoencephalopathies · LBSL · Leukoencephalopathy With Brainstem and Spinal Cord Involvement and Lactate Elevation  ·  Sponsor: Hugo W. Moser Research Institute at Kennedy Krieger, Inc.

PhaseN/A
Planned participants100
Who can joinAll sexes, N/A to no upper limit
Healthy volunteersNo

About this study

In this study, we will conduct retrospective chart and imaging reviews and prospective longitudinal virtual assessments of individuals with LBSL.

This description comes directly from the study's public registry record.

Talk to the study team

Aditii Makwana, MS  ·  667-205-4498  ·  makwana@kennedykrieger.org

Jordan Goodman, MS  ·  443-923-2769  ·  goodmanj@kennedykrieger.org

Always discuss trial participation with your own doctor first.

Locations (1)

Hugo Moser Center for LeukodystrophiesBaltimore, Maryland, United StatesRecruiting

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Source record: clinicaltrials.gov/study/NCT03624374