Condition: Primary Ciliary Dyskinesia · Kartagener Syndrome · Sponsor: University of Bern
The Swiss Primary Ciliary Dyskinesia (PCD) Registry is a national patient registry that collects information on diagnosis, symptoms, treatment and follow-up of patients with PCD in Switzerland and provides data for national and international monitoring and research.
This description comes directly from the study's public registry record.
Claudia E Kuehni, Prof · 0041 316313507 · spcdr@hin.ch
Myrofora Goutaki, PD, MD-PhD · 0041 316315973 · spcdr@hin.ch
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| University of Bern | Bern, Switzerland | Recruiting |
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Source record: clinicaltrials.gov/study/NCT03606200