Condition: Lipodystrophy Acquired · Lipodystrophy Congenital · Sponsor: University of Ulm
Given the lack of knowledge on lipodystrophies, the medical and social responsibility for the persons affected by it calls for the monitoring of the progression over long periods of time. Sensible clinical and basic research into rare diseases such as lipodystrophy is only possible in multi-location networks with sufficient case numbers. Also, reliable information on the incidence of certain manifestation patterns, health status, etc. is of utmost importance for health care and health policy in this rare disease. Therefore, the European Consortium of Lipodystrophies (ECLip), an association of European experts on lipodystrophy, has launched a registry (OSSE) for lipodystrophies which is committed to help to improve the research conditions by consolidating this kind of information in a registry.
This description comes directly from the study's public registry record.
Julia von Schnurbein, Dr. · 0049 731 500 · julia.schnurbein@uniklinik-ulm.de
Martin Wabitsch, Prof. Dr. · 0049 731 500 · martin.wabitsch@uniklinik-ulm.de
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| AP-HP Nord Université de Paris, Hôpital Universitaire Robert-Debré | Paris, France | Recruiting |
| Pierre et Marie Curie School of Medicine, Sorbonne University | Paris, France | Recruiting |
| Kinder-und Jugendkrankenhaus AUF DER BULT | Hanover, Germany | Recruiting |
| Department of Internal Medicine (Endocrinology and Nephrology), University of Leipzig | Leipzig, Germany | Recruiting |
| Med. Klinik B für Gastroenterologie und Hepatologie, Universitätsklinikum Münster | Münster, Germany | Recruiting |
| Dept for Pediatrics and Adolescent Medicine, University of Ulm: Interdisciplinary obesity clinic | Ulm, Germany | Recruiting |
| National and Kapodistrian University of Athens | Athens, Greece | Recruiting |
| Second Department of Internal Medicine, Medical School, National and Kapodistrian University of Athens, Attikon University Hospital | Athens, Greece | Recruiting |
| University of Szeged, Department of Internal Medicine | Szeged, Hungary | Recruiting |
| Endocrinology Unit, Department of Clinical and Medical science, S. Orsola-Malpighi Hospital , University of Bologna | Bologna, Italy | Recruiting |
+ 16 more locations — full list on the registry record.
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Source record: clinicaltrials.gov/study/NCT03553420