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Study identifier: NCT03466463 Synced from ClinicalTrials.gov · July 29, 2026
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Gene Therapy for Severe Crigler Najjar Syndrome

Condition: Crigler-Najjar Syndrome  ·  Sponsor: Genethon

PhaseNA
Planned participants17
Who can joinAll sexes, 9 Years to no upper limit
Healthy volunteersNo

About this study

This is a Phase 1/2, multinational, open-label, study to evaluate the safety and efficacy of an intravenous infusion of GNT0003 in patients with Crigler-Najjar aged ≥10 years and requiring phototherapy. Patients will received a single administration of GNT0003 and will be followed for safety and efficacy of approximately 60 months (5 years): * a follow-up of approximately 12 months (48 weeks) * a long term follow-up of approximately 48 months (4 years), in order to be in line with the latest EMEA Guideline on follow-up of patients administered with gene therapy medicinal products, released on 22 Oct.2009 by the Committee for medicinal products for human use.

This description comes directly from the study's public registry record.

Talk to the study team

Genethon Clinical Development Department  ·  00 33 (0)1 69 47 10 32  ·  clinical_development@genethon.fr

Always discuss trial participation with your own doctor first.

Locations (4)

Hopital Antoine BECLEREClamart, FranceRecruiting
ASST Papa Giovanni XXIIIBergamo, ItalyRecruiting
Azienda Ospedaliera Universitaria Federico IINaples, ItalyRecruiting
AMCAmsterdam, NetherlandsRecruiting

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Source record: clinicaltrials.gov/study/NCT03466463