Condition: Hemophilia A · Hemophilia B · Von Willebrand Diseases · Sponsor: World Federation of Hemophilia
The WBDR is an international observational disease registry of patients with hemophilia. It will provide a platform for a network of hemophilia treatment centres (HTCs) around the world to collect uniform and standardized patient data and guide clinical practice. With informed consent from the patient, the WBDR stores anonymous data about the person's disease, such as hemophilia type and severity, symptoms, and treatment.
This description comes directly from the study's public registry record.
Donna Coffin, M.Sc. · +15148757944 · dcoffin@wfh.org
Emily Ayoub, Ph.D. · +15148757944 · eayoub@wfh.org
Always discuss trial participation with your own doctor first.
| World Federation of Hemophilia | Montreal, Quebec, Canada | Recruiting |
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Source record: clinicaltrials.gov/study/NCT03327779