Condition: Fibrous Dysplasia · McCune Albright Syndrome · Mazabraud Syndrome · Sponsor: Tovah Burstein
The FD/MAS Patient Registry is an IRB-approved research study that that invites the patients and families to help answer some of the biggest questions about FD/MAS by completing questionnaires about their lives with FD or MAS. Have you enrolled in the FD/MAS Patient Registry yet? Are you up-to-date on your surveys? Take a trip to www.fdmasregistry.org today to learn more about the project, enroll, complete your surveys, or make sure you aren't due to provide more info! The FD/MAS Patient Registry: Your story powers research.
This description comes directly from the study's public registry record.
Carmel Shemmesh-Rafalowsky · PI.Registry@fibrousdysplasia.org
Tovah Burstein · 603-325-2489 · TBurstein@fibrousdysplasia.org
Always discuss trial participation with your own doctor first.
| Tovah Burstein | Bethesda, Maryland, United States | Recruiting |
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Source record: clinicaltrials.gov/study/NCT03231644