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Study identifier: NCT03193476 Synced from ClinicalTrials.gov · July 28, 2026
● Recruiting

Registry for Patients With X-Linked Hypophosphatemia

Condition: X-Linked Hypophosphatemia  ·  Sponsor: Kyowa Kirin Pharmaceutical Development Ltd

PhaseN/A
Planned participants1489
Who can joinAll sexes, N/A to no upper limit
Healthy volunteersNo

About this study

This is an international, multicentre, prospective, non-interventional, observational Registry of patients with X-Linked hypophosphatemia (XLH). The main objective of this XLH Registry is to collect data to characterise the treatment, progression and long-term outcomes of XLH in both adult and paediatric settings.

This description comes directly from the study's public registry record.

Talk to the study team

Clinical Trial Cordinator  ·  +49 15114861167  ·  KKI-IMA-XLH-Registry@kyowakirin.com

Always discuss trial participation with your own doctor first.

Locations (118)

Hopital Universitaire des Enfants Reine FabiolaBrussels, BelgiumActive Not Recruiting
Universitair Ziekenhuis BrusselBrussels, BelgiumActive Not Recruiting
Cliniques Universitaires Saint-LucBrussels, BelgiumActive Not Recruiting
UZAEdegem, BelgiumActive Not Recruiting
Universitair Ziekenhuis GentGhent, BelgiumActive Not Recruiting
UZ LeuvenLeuven, BelgiumActive Not Recruiting
CHU de LiègeLiège, BelgiumActive Not Recruiting
SHATPD "Prof Ivan Mitev" EADSofia, BulgariaActive Not Recruiting
UMHAT "SofiaMed", OODSofia, BulgariaActive Not Recruiting
Children HospitalBrno, CzechiaActive Not Recruiting
Fakultni nemocnice v MotolePrague, CzechiaActive Not Recruiting
Aalborg University HospitalAalborg, DenmarkActive Not Recruiting

+ 106 more locations — full list on the registry record.

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Source record: clinicaltrials.gov/study/NCT03193476