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Study identifier: NCT03137355 Synced from ClinicalTrials.gov · July 29, 2026
● Recruiting

The International Registry for Leigh Syndrome

Condition: Leigh Syndrome · Leigh Disease · Leigh's Necrotizing Encephalopathy  ·  Sponsor: The University of Texas Health Science Center, Houston

PhaseN/A
Planned participants200
Who can joinAll sexes, 0 Days to 100 Years
Healthy volunteersNo

About this study

The purpose of this study is to develop a database containing clinical and laboratory information for patients with Leigh syndrome. The goal is to provide a greater understanding of Leigh syndrome allowing further characterization of this disease.

This description comes directly from the study's public registry record.

Talk to the study team

Mary Kay Koenig, MD  ·  713-500-7164  ·  leigh@uth.tmc.edu

William Guerra  ·  713-500-7164  ·  leigh@uth.tmc.edu

Always discuss trial participation with your own doctor first.

Locations (1)

The University of Texas Health Science Center at HoustonHouston, Texas, United StatesRecruiting

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Source record: clinicaltrials.gov/study/NCT03137355