Condition: Cystic Fibrosis · Sponsor: Medizinische Hochschule Brandenburg Theodor Fontane
Development, validation and evaluation of a new multimodal questionnaire to assess and quantify the abdominal involvement in patients with the inherited life shortening multi-organ disease Cystic fibrosis. In the stepwhise development of the patient reported outcome measures (PROM) repeadedly, CF-patients, their families as well as professionals working in different fields of CF-care will be included.
This description comes directly from the study's public registry record.
Jochen G Mainz, Prof. MD · +493381411803 · jochen.mainz@mhb-fontane.de
Franziska Duckstein, MA · +493381411841 · f.duckstein@klinikum-brandenburg.de
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| Klinikum Westbrandenburg | Brandenburg an der Havel, Germany | Recruiting |
| Medizinische Hochschule Brandenburg (MHB), University | Brandenburg an der Havel, Germany | Recruiting |
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Source record: clinicaltrials.gov/study/NCT03052283