Condition: Leukodystrophy · White Matter Disease · Leukoencephalopathies · Sponsor: Children's Hospital of Philadelphia
The Myelin Disorders Biorepository Project (MDBP) seeks to collect and analyze clinical data and biological samples from leukodystrophy patients worldwide to support ongoing and future research projects. The MDBP is one of the world's largest leukodystrophy biorepositories, having enrolled nearly 2,000 affected individuals since it was launched over a decade ago. Researchers working in the biorepository hope to use these materials to uncover new genetic etiologies for various leukodystrophies, develop biomarkers for use in future clinical trials, and better understand the natural history of these disorders. The knowledge gained from these efforts may help improve the diagnostic tools and treatment options available to patients in the future.
This description comes directly from the study's public registry record.
Omar S. Sherbini, MPH · 215-590-3068 · sherbinio@chop.edu
Always discuss trial participation with your own doctor first.
| Children's Hospital of Los Angeles | Los Angeles, California, United States | Recruiting |
| Children's Hospital of Orange County | Orange, California, United States | Recruiting |
| Stanford University (Lucile Packard Children's Hospital) | Palo Alto, California, United States | Recruiting |
| University of California, Davis (UC Davis Health) | Sacramento, California, United States | Recruiting |
| University of California, San Diego (Rady Children's Hospital) | San Diego, California, United States | Recruiting |
| UCSF Benioff Children's Hospital | San Francisco, California, United States | Recruiting |
| Children's National Medical Center | Washington D.C., District of Columbia, United States | Recruiting |
| Emory University (Children's Healthcare of Atlanta) | Atlanta, Georgia, United States | Recruiting |
| Ann & Robert H. Lurie Children's Hospital of Chicago | Chicago, Illinois, United States | Recruiting |
| Kennedy Krieger Institute | Baltimore, Maryland, United States | Recruiting |
| Massachusetts General Hospital (MGH) | Boston, Massachusetts, United States | Recruiting |
| University of Minnesota | Minneapolis, Minnesota, United States | Recruiting |
+ 11 more locations — full list on the registry record.
Get one email when the public record changes — results posted, or the study's status changes. Nothing else, ever.
We email about this public record only. Unsubscribe anytime with one click. Never medical advice.
This page is independently generated by Eichor from the public ClinicalTrials.gov record and re-synced daily. It is not the sponsor's official website unless claimed. Nothing here is medical advice; eligibility is always determined by the study team — talk to your own doctor first.
Source record: clinicaltrials.gov/study/NCT03047369