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Study identifier: NCT02979119 Synced from ClinicalTrials.gov · July 28, 2026
● Recruiting

The European Paediatric Network for Haemophilia Management ( PedNet Registry)

Condition: Factor VIII Deficiency · Factor IX Deficiency  ·  Sponsor: PedNet Haemophilia Research Foundation

PhaseN/A
Planned participants4000
Who can joinAll sexes, N/A to no upper limit
Healthy volunteersNo

About this study

Rationale: Haemophilia is a rare disease; to improve knowledge international collaboration is needed. Well-defined clinical data will be collected from complete cohorts in order to prevent selection bias. Objective: To collect data on bleeding during neonatal period, endogenous (genetic) and exogenous (treatment-related) determinants of inhibitor development and long term outcome.

This description comes directly from the study's public registry record.

Talk to the study team

Angelique Hermeling  ·  +31850299993  ·  a.hermeling@pednet.eu

Hermeling  ·  info@pednet.eu

Always discuss trial participation with your own doctor first.

Locations (39)

Universitäts-Klinik für Kinder- und JugendheilkundeGraz, AustriaCompleted
Medical University of Vienna - Department of PaediatricsVienna, AustriaRecruiting
Service of Pediatric Haematology University Hospital LeuvenLeuven, BelgiumRecruiting
Division of Hematology/Oncology Hôpital St JustineMontreal, CanadaRecruiting
Division of Haematology/Oncology Hospital for Sick ChildrenToronto, CanadaRecruiting
Haemophilia Comprehensive Care Centre, Centre for Thrombosis and Haemostasis Children's University Hospital BrnoBrno, CzechiaRecruiting
Department of Paediatric Haematology/oncology - University Hospital MotolPrague, CzechiaRecruiting
Department of Pediatrics Århus Kommunehospital Skejby SygehusAarhus, DenmarkRecruiting
Children's Hospital Helsinki University HospitalHelsinki, FinlandRecruiting
Service Hématologique Centre Regional Traitement d'Hemophilie BicetreLe Kremlin-Bicêtre, FranceRecruiting
Service d'Hématologie Pédiatrique Hôpital Universitaire La TimoneMarseille Cedex-05, FranceRecruiting
Centre de traitement des hémophiles Hôpital Universitaire PurpanToulouse, FranceRecruiting

+ 27 more locations — full list on the registry record.

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Source record: clinicaltrials.gov/study/NCT02979119