Condition: Congenital Dyserythropoietic Anemia (CDA) · Sponsor: Children's Hospital Medical Center, Cincinnati
The investigators have created and maintain a comprehensive registry for patients with the diagnosis of Congenital Dyserythropoietic Anemia (CDA) in North America. The goal of this registry is to collect long-term confidential data on patients with CDA in the US, Canada, and Mexico and maintain a bio-repository of de-identified patient blood and bone marrow specimens as a tool for the investigation of epidemiology, natural history, biology, and molecular pathogenetic mechanisms of CDA.
This description comes directly from the study's public registry record.
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Source record: clinicaltrials.gov/study/NCT02964494