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Study identifier: NCT02918032 Synced from ClinicalTrials.gov · July 28, 2026
● Recruiting

International Registry Study of Neutral Lipid Storage Disease (NLSD) / Triglyceride Deposit Cardiomyovasculopathy (TGCV) and Related Diseases

Condition: Neutral Lipid Storage Disease  ·  Sponsor: Translational Research Center for Medical Innovation, Kobe, Hyogo, Japan

PhaseN/A
Planned participants120
Who can joinAll sexes, N/A to no upper limit
Healthy volunteersNo

About this study

This study aims to understand the state of onset of NLSD(neutral lipid storage disease) / TGCV(triglyceride deposit cardiovasculopathy) worldwide, background information of affected patients, and natural history of the disease, as well as exploring the prognostic factors and assessing the efficacy of disease-specific treatment.

This description comes directly from the study's public registry record.

Talk to the study team

Kenichi Hirano, MD, Ph.D  ·  +81-6-6872-8215

Always discuss trial participation with your own doctor first.

Locations (15)

Stanford UniversityStanford, California, United StatesRecruiting
Columbia UniversityNew York, New York, United StatesRecruiting
University of GrazGraz, Styria, AustriaRecruiting
Peking University First HospitalBeijing, Beijing Municipality, ChinaRecruiting
Pitié-Salpêtrière HospitalParis, Paris, FranceRecruiting
Ludwig-Maximilians UniversityMunich, Bavaria, GermanyRecruiting
Sapienza University of RomeRome, Lazio, ItalyRecruiting
A.C.O. San Filippo Neri HospitalRome, Lazio, ItalyRecruiting
Catholic UniversityMilan, Lombardy, ItalyRecruiting
University of PadovaPadova, Veneto, ItalyRecruiting
Graduate School of Osaka UniversitySuita, Osaka, JapanRecruiting
National Center of Neurology and PsychiatryKodaira, Tokyo, JapanRecruiting

+ 3 more locations — full list on the registry record.

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Source record: clinicaltrials.gov/study/NCT02918032