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Study identifier: NCT02639312 Synced from ClinicalTrials.gov · July 28, 2026
● Recruiting

Natural History of Craniofacial Anomalies and Developmental Growth Variants

Condition: Prognathism · Retrognathism · Dentofacial Deformities  ·  Sponsor: National Institute of Dental and Craniofacial Research (NIDCR)

PhaseN/A
Planned participants2400
Who can joinAll sexes, 2 Years to 100 Years
Healthy volunteersYes

About this study

Background: Some head and facial abnormalities are rare and present at birth. Others are more common, and may not show up until puberty. These conditions have different causes and characteristics. Researchers want to learn more about these conditions by comparing people with face, head, and neck abnormalities to family members and to healthy volunteers without such conditions. Objectives: To learn more about abnormal development of the face, head, and neck. To determine their genetic variants. Eligibility: People who have not had surgery for facial trauma: People ages 2 and older with craniofacial abnormalities (may participate offsite) Unaffected relatives ages 2 and older Healthy volunteers ages 6 and older Design: Participants will be screened with medical history and physical exam focusing on head, face, and neck Participants may be followed for several years. Visits may require staying near the clinic for a few days. A visit is required for the following developmental stages, along with follow-up visits: Age 2-6 Age 6-10 Age 11-17 Age 18 and older Visits may include: Medical history Physical exam Questionnaires Oral exam Blood and urine tests Cheek swab: a cotton swab will be wiped across the inside of the cheek several times. Cone beam CT scan (CBCT): x-rays create an image of the head, face, teeth, and neck. Participants will stand still or sit on a chair for about 20 minutes while the scanner rotates around the head. Photos of the head and fa…

This description comes directly from the study's public registry record.

Talk to the study team

Pamela M Orzechowski, R.N.  ·  (301) 402-7373  ·  ps363q@nih.gov

Konstantinia Almpani, D.D.S.  ·  (301) 827-1647  ·  nadine.almpani@nih.gov

Always discuss trial participation with your own doctor first.

Locations (1)

National Institutes of Health Clinical CenterBethesda, Maryland, United StatesRecruiting

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Source record: clinicaltrials.gov/study/NCT02639312