Condition: Primary Ciliary Dyskinesia (PCD) · Sponsor: University Hospital Muenster
The purpose of the international prospective PCD Patient Registry is to systematically measure, survey and compare different aspects of PCD manifestation, course and treatment, to provide data for epidemiological research and to identify special patient groups suitable for multi-center trials. This International PCD Registry is also part of the European Reference Network ERN-LUNG. We follow the recommendations of the EU Expert Committee on Rare Diseases (EUCERD), which recommend an international interoperability of registries and databases to pool and exchange knowledge and data on rare diseases.
This description comes directly from the study's public registry record.
Petra Pennekamp, PhD · +4925183 · petra.pennekamp@ukmuenster.de
Simone Helms · +4925183 · Simone.Helms@ukmuenster.de
Always discuss trial participation with your own doctor first.
| University Hospital Münster | Münster, North Rhine-Westphalia, Germany | Recruiting |
| University Hospital Muenster, Department of General Pediatrics | Münster, Germany | Recruiting |
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Source record: clinicaltrials.gov/study/NCT02419365