Condition: Lymphatic Malformation · Generalized Lymphatic Anomaly (GLA) · Central Conducting Lymphatic Anomaly · Sponsor: Boston Children's Hospital
Lymphatic anomalies are a rare subset of vascular anomalies that are poorly understood. the understanding of the natural history, long-term outcomes, risk factors for morbidity and mortality, and the relative benefit of medical therapies and procedures is limited.The goal of this project is to better understand these diseases and improve the care of theses rare patients. To do this, the investigators are conducting an observational study of patients with lymphatic anomalies, including an annual follow-up questionnaire to gather prospective data on mortality, morbidity, treatments, and functionality as well as quality of life.
This description comes directly from the study's public registry record.
Kelsey Deemer, BS · 617-355-5226 · Lymphaticregistry@childrens.harvard.edu
Meghan O'Hare, CPNP · 617-355-5226 · Lymphaticregistry@childrens.harvard.edu
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| Boston Children's Hospital | Boston, Massachusetts, United States | Recruiting |
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Source record: clinicaltrials.gov/study/NCT02399527