Condition: Pachyonychia Congenita · Sponsor: Pachyonychia Congenita Project
International Pachyonychia Congenita Research Registry (IPCRR) is a patient registry for those suffering from Pachyonychia Congenita (PC). PC is an ultra-rare extremely painful skin disorder that causes painful blisters and callus on feet and sometimes hands, thickened nails, cysts and other features. The IPCRR consists of a questionnaire, patient photos, optional physician notes from telephone consultation to validate questionnaire and free genetic testing.
This description comes directly from the study's public registry record.
Holly A Evans · 8019878758 · holly.evans@pachyonychia.org
Janice N Schwartz · 8019878758 · jan.schwartz@pachyonychia.org
Always discuss trial participation with your own doctor first.
| Pachyonychia Congenita Project | Salt Lake City, Utah, United States | Recruiting |
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Source record: clinicaltrials.gov/study/NCT02321423