Condition: Duchenne Muscular Dystrophy · Becker Muscular Dystrophy · Dystrophinopathy · Sponsor: The Duchenne Registry
The Duchenne Registry is an online, patient-report registry for individuals with Duchenne and Becker muscular dystrophy and carrier females. The purpose of the Registry is to connect Duchenne and Becker patients with actively recruiting clinical trials and research studies, and to educate patients and families about Duchenne and Becker care and research. At the same time, The Duchenne Registry is a valuable resource for clinicians and researchers in academia and industry, allowing access to de-identified datasets provided by patients and their families-information that is vital to advances in the care and treatment of Duchenne. The Duchenne Registry is a member of the TREAT-NMD Neuromuscular Network.
This description comes directly from the study's public registry record.
Ann Martin, MS, CGC · 888-520-8675 · coordinator@duchenneregistry.org
Lauren Bogue, MS, CGC · 888-520-8675 · coordinator@duchenneregistry.org
Always discuss trial participation with your own doctor first.
| The Duchenne Registry / PPMD | Washington D.C., District of Columbia, United States | Recruiting |
Get one email when the public record changes — results posted, or the study's status changes. Nothing else, ever.
We email about this public record only. Unsubscribe anytime with one click. Never medical advice.
This page is independently generated by Eichor from the public ClinicalTrials.gov record and re-synced daily. It is not the sponsor's official website unless claimed. Nothing here is medical advice; eligibility is always determined by the study team — talk to your own doctor first.
Source record: clinicaltrials.gov/study/NCT02069756