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Study identifier: NCT01950624 Synced from ClinicalTrials.gov · July 29, 2026
● Recruiting

DS-Connect®: The Down Syndrome Registry

Condition: Down Syndrome  ·  Sponsor: University of Colorado, Denver

PhaseN/A
Planned participants100000
Who can joinAll sexes, N/A to no upper limit
Healthy volunteersNo

About this study

The goal of this study is to develop a registry for Down syndrome (DS) to facilitate research participation by individuals with Down syndrome. DS-Connect® is an online survey tool designed to collect demographic data and health information from individuals with DS. It is open to all people with Down syndrome. The purposes of DS-Connect® are: 1. To identify the various phenotypic manifestations of DS. 2. To identify individuals with DS who may be eligible for research studies or new clinical trials, based on specific information about their diagnosis and health history.

This description comes directly from the study's public registry record.

Talk to the study team

Anne Fiala  ·  (303) 724-6599  ·  info@ds-connect.org

Angela Rachubinski, PhD

Always discuss trial participation with your own doctor first.

Locations (1)

Linda Crnic Institute for Down SyndromeAurora, Colorado, United StatesRecruiting

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Source record: clinicaltrials.gov/study/NCT01950624