Condition: Idiopathic Pulmonary Fibrosis, Interstitial Lung Disease · Sponsor: Duke University
The Idiopathic Pulmonary Fibrosis Prospective Outcomes (IPF-PRO) Registry started recruiting in 2014 with the objective of studying Idiopathic Pulmonary Fibrosis. In 2018, the registry expanded to include recruitment of participants with other chronic fibrosing interstitial lung diseases (ILDs) with progressive phenotype also referred to as progressive fibrosing interstitial lung diseases in the Chronic Fibrosis Interstitial Lung Disease with Progressive Phenotype (ILD-PRO) Registry. When the third phase of the registry begins, the IPF-PRO registry will enroll additional patients with idiopathic pulmonary fibrosis. This IPF-PRO registry is a prospective registry that will collect information regarding the natural history, health care interactions, participant reported questionnaire data to assess quality of life, and the methods of treatment of participants with a diagnosis of idiopathic pulmonary fibrosis (IPF) or of another chronic fibrosing interstitial lung disease (ILD) with progressive phenotype established at the enrolling centers. In addition, blood samples and chest image studies will be collected and banked for future research projects.
This description comes directly from the study's public registry record.
Rosalia Blanco · 919-660-0890 · rosalia.blanco@duke.edu
Always discuss trial participation with your own doctor first.
| University of Alabama - Birmingham | Birmingham, Alabama, United States | Recruiting |
| University of Arizona | Tucson, Arizona, United States | Recruiting |
| University of California - Los Angeles | Los Angeles, California, United States | Recruiting |
| University of Southern California | Los Angeles, California, United States | Recruiting |
| Stanford University | Stanford, California, United States | Recruiting |
| University of Colorado | Aurora, Colorado, United States | Recruiting |
| Yale University | New Haven, Connecticut, United States | Recruiting |
| University of Florida | Gainesville, Florida, United States | Recruiting |
| University of South Florida | Tampa, Florida, United States | Recruiting |
| Emory University | Atlanta, Georgia, United States | Recruiting |
| Piedmont Healthcare | Austell, Georgia, United States | Recruiting |
| University of Chicago | Chicago, Illinois, United States | Recruiting |
+ 32 more locations — full list on the registry record.
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Source record: clinicaltrials.gov/study/NCT01915511