Condition: Neurofibromatosis 1 · Neurofibromatosis 2 · Schwannomatosis · Sponsor: The Children's Tumor Foundation
The NF Registry is a database of patient-reported symptoms, treatments, and experiences with their neurofibromatosis disease. It is a contact registry to relay clinical trial opportunities to targeted patient subgroups, and to supply de-identified disease data to researchers. It has the potential to become a natural history resource.
This description comes directly from the study's public registry record.
Kate Kelts, B.S.N. · 646-738-8567 · kkelts@ctf.org
Annette Bakker, Ph.D. · 212-344-7029 · abakker@ctf.org
Always discuss trial participation with your own doctor first.
| Children's Tumor Fundation | New York, New York, United States | Recruiting |
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Source record: clinicaltrials.gov/study/NCT01885767