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Study identifier: NCT01793168 Synced from ClinicalTrials.gov · July 28, 2026
● Recruiting

Rare Disease Patient Registry & Natural History Study - Coordination of Rare Diseases at Sanford

Condition: Rare Disorders · Undiagnosed Disorders · Disorders of Unknown Prevalence  ·  Sponsor: Sanford Health

PhaseN/A
Planned participants20000
Who can joinAll sexes, N/A to no upper limit
Healthy volunteersNo

About this study

CoRDS, or the Coordination of Rare Diseases at Sanford, is based at Sanford Research in Sioux Falls, South Dakota. It provides researchers with a centralized, international patient registry for all rare diseases. This program allows patients and researchers to connect as easily as possible to help advance treatments and cures for rare diseases. The CoRDS team works with patient advocacy groups, individuals and researchers to help in the advancement of research in over 7,000 rare diseases. The registry is free for patients to enroll and researchers to access. Visit sanfordresearch.org/CoRDS to enroll.

This description comes directly from the study's public registry record.

Talk to the study team

CoRDS Team  ·  1-877-658-9192  ·  cords@sanfordhealth.org

Always discuss trial participation with your own doctor first.

Locations (2)

Sanford HealthSioux Falls, South Dakota, United StatesRecruiting
Online Patient Enrollment SystemSydney, AustraliaRecruiting

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Source record: clinicaltrials.gov/study/NCT01793168